Autism Parents Support
For Parents and Carers BY Parents and Carers
We are a group of parents and carers, not medical experts. Always access professional medical advice if you are in any doubt for your child.
Support through Facebook Specialist Chat Groups
This website is the ‘public’ face of a range of groups on Facebook that can offer
much more in-
Help, advice and friendship -
Below are links to our various Facebook groups (and also some of the other specialist groups we run
for some other conditions). All the group titles are self-
Position, please ask to join us! We also have a Pinterest page for all our awareness posters too.
All of our Autism groups (except the Dads group) are based around Autism Parents
be a member of that group to be a member of any of the others. The non-
Autism Parents Chat
This is our original and largest group. We cover anything and everything! We have become very adept
with the ‘serious’ questions with plenty of advice and sympathy as required! But beware, we
DO like to have a laugh! Some of it can be quite unconventional, but then that often helps many to
lighten their day!
Some just pop in and have a read, others actively join in -
No matter how odd you think your question is and that you are the only one on
the planet to have faced it -
Autism Dads Support
Men often struggle expressing feelings, especially in a group with mainly women
place you can ask anything you want & have a good laugh -
Note: We like to have a few ‘distractions’ from daily life as well -
Autism Parents Chat -
You need be a member of APC to join these groups. Autism Parents Chat is a truly global group! But we want to bring people together face to
As well as Mainland UK & Ireland, we have Europe, North America, Australasia and ‘The rest of the world’! The point is to join the group relevant to where you live and hopefully find like minded people near to you that you can then make ‘real world’ friendships with.
Autism Parents Chat -
You need be a member of APC to join this group. This group is aimed specifically at sharing good experiences of days out and holiday
destinations that are suited for our ASDers! This is not about one off 'events', but rather things that are always available.
Of course, what's good for one will not always be good for another, but anything that can help others HAS to be a good thing! We also welcome tips and hints about the places you’ve been to as well.
Autism Parents Community
Autism Parents Community is a Facebook Page (as opposed to a Group!) and is open for ALL to see! We include many inspirational
posters to spread the ‘message’!
This is a general information page, where we share also inspiring stories
and useful information -
Autism for everyone! Please tell as many people as you can about this page
Autism Awareness Posters
In addition to our Facebook groups and page w e also have a Pinterest page dedicated to all the awareness posters we have created and
published on the Community Page mentioned above! Like the page, it is open for all to see.
Please feel free to copy and share any of our posters! Many have a humorous side, but all promote Autism awareness!
As stated at the top of this page, as well as all our groups specific to Autism, we also have several other groups specific to other medical conditions. These are shown below. They are completely independent of the Autism groups, so your child doesn’t need to have Autism for you to join. Of course, they DO need to have the specified conditions (or suspected)…
Epilepsy Parents Chat
Epilepsy Parents Chat covers everything to do with Epilepsy for our children/young adults. No matter what type of seizure, it’s cause or it’s severity,
this is the place to discuss whatever you need to know and make friends with other parents dealing with the same issues.
Whether it’s how to spot a seizure, medications (and their side-
and be helped by others that understand!
Klinefelter Parents Chat
Klinefelter Parents Chat covers all aspects of Klinefelter Syndrome / XXY (and variants) for our boys/young men. This is a chromosomal issue
and the group is the place to discuss whatever you need to know and to make friends with other parents dealing with the same issues.
Whether it’s issues around fertility, medications (and their side-
and be helped!
Leukaemia Parents Chat
Leukaemia Parents Chat covers everything to do with all forms of childhood Leukaemia. This is a very testing time for anyone and can be
difficult to talk about, but this is the place to discuss whatever you need to know and make friends with other parents dealing with the same issues.
Whether it’s about the medications (and their side-
Coping with CFS & Fibromyalgia
Our CFS & Fibromyalgia group covers everything to do with these issues and other
Rheumatic conditions in us -
place to discuss whatever you need to know and make friends with other people dealing with the same issues.
Whether it’s recognising the symptoms, the various medications (and their side-
and want to help and be helped!
WELCOME TO HOLLAND
© Emily Perl Kingsley. 1987
I am often asked to describe the experience of raising a child with a disability
When you're going to have a baby, it's like planning a fabulous vacation trip -
After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."
"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."
But there's been a change in the flight plan. They've landed in Holland and there you must stay.
The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.
So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.
It's just a different place. It's slower-
But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."
And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss.
But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.
Autism Parents Chat -
You need be a member of APC to join this group. Parents of Special Needs children often concentrate so much care on the children, they often
forget to look after themselves! Health & Wellbeing exists specifically for the PARENTS/CARERS to help correct the ‘balance’!
This is not a group about the issues of our children. This is about OUR aches, pains and worries. Whether it’s about losing weight or making it
to the doctor or any medical condition, there are others here in the same or similar condition just waiting to support and be supported.