Autism Parents Support

For Parents and Carers BY Parents and Carers

We are a group of parents and carers, not medical experts. Always access professional medical advice if you are in any doubt for your child.

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Support through Facebook Specialist Chat Groups


This website is the  ‘public’  face of a range of  groups on Facebook that can offer  much  more in-depth

Help,  advice and  friendship  -  with other  people just like you!


Below  are links to our  various Facebook groups  (and  also some of the other  specialist groups we run

for some other  conditions).  All the group titles are  self-explanatory,  so if a group  ‘fits’  you and  your

Position, please ask to join us!  We also have a Pinterest page for all our awareness posters too.


All of our Autism groups  (except the Dads group)  are based  around Autism Parents Chat -  so you MUST

be a  member of  that group to  be a member of any of the others.  The non-Autism  groups are all  ‘stand alone’ -  you don’t have to have any involvement in Autism to be a member.  For the free-standing groups, just click on them to be taken to them to join  (you DO need to be a member of Facebook of course)…

Autism Parents Chat


This is  our original and  largest group.  We cover anything and everything!   We  have  become very  adept

with   the  ‘serious’   questions   with   plenty  of   advice  and   sympathy  as  required!    But  beware,   we  

DO  like to  have a  laugh!   Some  of  it  can  be  quite  unconventional,   but then  that  often  helps  many to  

lighten their  day!


Some  just  pop  in  and  have a  read,  others  actively join  in  -  you  do  whatever  suits  you  -  that’s  just  fine  by  us!  Whatever  works for  YOU!   Ask a question  -  you’ll  be  surprised  at the high quality of  the  answers you  will receive  -  all from people who have the  RIGHT  experience  -  life with an  autistic child or  young adult!   And  never a dull  moment!


No matter how  odd you think your  question is and that you are the  only one on the planet to have faced it  -  you are  NOT alone  -  there are plenty of  others with  great  advice who  have already  been  ‘there’  -  honest!!!!

Autism Dads Support


Men often  struggle expressing feelings,  especially in a group with  mainly women  -  Autism Dads Support  is a

place you  can ask anything you want  &  have a good laugh  -  ALL from a male perspective!

Note:  We like to have a few ‘distractions’ from daily life as  well  -  please bear that in mind when you  join!

Autism Parents Chat - Where are you from?


You need be a member of APC to join these groups.   Autism  Parents  Chat is a truly global group!  But we  want to  bring people  together  face to

face -   meet with like minded people etc!  “Where are you from” does exactly that!  We have a number of different groups covering the world.


As  well as   Mainland  UK & Ireland,  we have Europe,  North  America,  Australasia  and  ‘The rest of the world’!   The point is  to  join  the group relevant  to       where you live and  hopefully find like minded  people near to you that you can  then make  ‘real world’  friendships with.

Autism Parents Chat - Days out and Holidays


You  need be a  member of  APC  to join  this group.   This  group is  aimed  specifically  at  sharing  good  experiences of   days out  and  holiday

destinations   that are  suited for our ASDers!   This is not  about one off  'events',  but rather  things that  are always  available.


Of course,  what's good for  one  will not  always  be  good  for another,  but anything  that can  help others  HAS to be  a good  thing!   We also  welcome             tips and hints  about the places you’ve  been to  as  well.

Autism Parents Community


Autism  Parents  Community  is a  Facebook  Page  (as  opposed to a Group!)   and  is  open  for  ALL  to  see!   We  include  many  inspirational

posters to  spread the ‘message’!


This is  a general  information  page,  where  we share  also inspiring  stories  and useful  information  -  all  in a bid  to  give a  better  understanding  of

Autism for  everyone!   Please tell  as many  people as  you can about this  page  -  the more  the merrier!

Autism Awareness Posters


In addition  to our  Facebook  groups  and page w e  also have a  Pinterest   page  dedicated  to all  the awareness  posters  we  have  created  and

published  on the  Community Page  mentioned  above!  Like  the page,  it  is open  for  all  to see.


Please  feel free to copy  and share any  of  our  posters!  Many  have a  humorous side,  but  all  promote  Autism awareness!

As stated at the top of this page, as well as all our groups specific to Autism, we also have several other groups specific to other medical conditions.  These are shown below.  They are completely independent of the Autism groups, so your child doesn’t need to have Autism for you to join.  Of course, they DO need to have the specified conditions (or suspected)…

Epilepsy Parents Chat


Epilepsy Parents Chat  covers everything to do with Epilepsy for our children/young adults. No matter what type of seizure, it’s cause or it’s severity,

this is the place  to discuss  whatever you  need to  know and make  friends  with other parents  dealing with the same  issues.


Whether  it’s how to spot a seizure,  medications  (and  their side-effects!) or anything else,  we all share the same kind of  issues and  want to  help

and  be  helped by  others  that understand!

Klinefelter Parents Chat


Klinefelter Parents Chat  covers all  aspects of  Klinefelter Syndrome / XXY  (and variants)  for our boys/young  men.  This is a  chromosomal  issue

and the group is the place  to discuss  whatever you  need to  know and to make  friends  with other parents  dealing with the same  issues.


Whether it’s issues around fertility,  medications (and  their side-effects!)  or anything else,  we all share the same kind of  issues and  want to  help

and  be  helped!

Leukaemia Parents Chat


Leukaemia Parents Chat  covers  everything  to do  with  all  forms of  childhood  Leukaemia.   This is a very  testing  time for  anyone  and  can be

difficult  to talk about, but this is the place  to discuss whatever you need to know and make friends with other parents dealing with the same issues.


Whether  it’s about the medications (and their side-effects!) or anything else,  we all share the same kind of issues and  want to support each other.

Coping with CFS & Fibromyalgia


Our  CFS & Fibromyalgia  group covers  everything to  do with  these issues and other  Rheumatic conditions in  us  -  the ‘grown ups’.  This  is  the

place to  discuss  whatever you  need to  know and make  friends  with other people  dealing with the same  issues.


Whether  it’s recognising the symptoms,  the various medications (and  their side-effects!)  or anything else,  we all  share  the same kind of  issues

and  want to  help and be  helped!

WELCOME TO HOLLAND

© Emily Perl Kingsley. 1987


I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It's like this......


When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. The Michelangelo David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.


After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."


"Holland?!?" you say. "What do you mean Holland?? I signed up for Italy! I'm supposed to be in Italy. All my life I've dreamed of going to Italy."


But there's been a change in the flight plan. They've landed in Holland and there you must stay.


The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.


So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.


It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around.... and you begin to notice that Holland has windmills....and Holland has tulips. Holland even has Rembrandt's.


But everyone you know is busy coming and going from Italy... and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say "Yes, that's where I was supposed to go. That's what I had planned."


And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very very significant loss.


But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things ... about Holland.

Autism Parents Chat - Health & Wellbeing


You need be a member of APC to join this group.   Parents of  Special Needs  children  often concentrate so much care on the children,  they  often

forget  to look after themselves!   Health & Wellbeing  exists specifically for the PARENTS/CARERS to help correct the ‘balance’!


This is not a group about the issues  of our children.  This is about  OUR aches,  pains and worries.   Whether it’s about  losing  weight  or making it

to the  doctor or any medical condition,  there are others here in the same or similar condition just waiting to support and be supported.